A few years after getting ill, I discovered that I can write interesting stories about things that happen inside or close to my home. For instance about birds or cats visiting our garden (preferably not at the same time), books, music or even what we had for dinner. This time it is about my shoes, my empty shoes. Who needs shoes while lying on the sofa, anyway?
And that is exactly the point of the campaign #MillionsMissing. A pair of empty shoes is a metaphor for all the things people with Myalgic Encephalomyelitis (M.E.) are missing. Missing from their careers, schools, social lives and families due to the debilitating symptoms of the disease. On Wednesday, May 25, ME/CFS patients, caregivers and advocates in nine cities around the world gathered for a global day of action to demand research, treatment and an end to the stigma. And on September 27, it is time for round two for this campaign hoping to get even more attention. Shoes from people with M.E. will fill the pavement as a silent protest.
The empty shoes are, I think, a brilliant symbol of the freedom we lack. It makes me think about the things I miss out on, and those are – to be honest – things I don’t want to think about too often. Me missing out on having a job, doing my own grocery shopping, interacting with people, having dinner with my partner, visiting a museum or art centre. I think about all those places my shoes and I went. Indeed, me missing that freedom that I had once, a decade ago.
On September 27, in the Netherlands, the #MillionsMissing campaign will be located in The Hague, the political centre of our country. I can only hope that a high profile politician, a billionaire would be nice as well, is touched by this gesture and understands the need for research. Someone who is willing to make an effort, and by this campaign – my empty shoes being a part of it – appreciate their own shoes, appreciate their shoes for not being empty, appreciate their freedom.
If you want to participate, support or simply more information about this campaign: #MillionsMissing by ME Action
Please, feel free to share, I think this campaign is worth it.
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This post is also available in: Dutch